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Intimate connections and singular embodiments: disability in times of the Covid-19 pandemic

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In Brazil, most state governors and city mayors in Brazil have been following the World Health Organization (WHO) guidelines and, in defiance of federal government protocol, have adopted policies of social isolation and distancing. To stay home with our families, going out only when necessary is an effective policy for care and prevention aimed at the “general population.” Still, when …

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The Work of Care

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I have been conducting research on intellectual disability and care practices among families of diverse socioeconomic backgrounds in Porto Alegre, Brazil, since 2014.1 Despite the many differences in family arrangements, class, race, and sociocultural background, most of my interlocutors share a common concern: “Who will care for my child once I am no longer able to do so?” As …

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