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Lectures

Becoming ‘not ready’: the case of the moving threshold in a dementia prevention trial

This article is part of the following series:

In a behavioural testing room of a clinical research facility, a well-dressed, white-haired woman is undergoing a battery of cognitive, neurological, and physiological tests. The facility, flanked by huge beech trees and set back from the road, was once a place for the severely mentally ill; known in the 19th century as a lunatic asylum, and later, a secure …

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Lectures

The ‘truth’ about ALS: Reconciling bias, motives, and etiological gaps

This article is part of the following series:

In February of 2019, I was giving a talk in New Haven, Connecticut. My paper was an overview of my research, titled “Is It a ‘White Disease’? ALS, Race, and Suffering in St. Louis, MO.” I closed with an ethnographic vignette from a key informant, Tyrell, whose brother had died from amyotrophic lateral sclerosis (ALS) three years prior, after being …

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Web Roundups

Web Roundup: Marching for Science, which is what, exactly?

Many of you may have marched (or chosen not to march) at last week’s March for Science. I marched with my partner and young son here in Coimbatore, India.

It’s fair to say that confusion, controversy, and disagreement plagued the Science March from early on, for two important reasons: The first, from a group of scientists who believe the …

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Web Roundups

Web Roundup: Data, Safety, and Bias

Many people probably saw the news that Facebook allegedly privileges left-leaning stories in its trending news section, a story broken by Gizmodo at the beginning of this month. The BBC builds on this report to explore how what we see online (and the various ways in which this get tailored more and more specifically to us) affects our behavior. “[I]t …

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